Tuesday, June 8, 2010

Fear Factor.

Don't get your hopes up - Joe Rogan is nowhere to be found, if he raises your hopes.

So... Yesterday I'm having a grand ole day and I get home from work and I'm eating dinner, picking up, watching some tv, working on the computer - all is handy dandy. Then... I turn off the tv, The X-Files - I'm hooked, seriously - and I go from tired to wide awake in 2 minutes flat. I am just tossing and turning. All of a sudden I feel a slight tingle, or maybe heat? - it was hard to say, in my legs. Starting low in my calves, after a half hour becoming pretty obvious. It felt as if a nurse had wrapped a couple blood pressure armbands around each of my calves.
Instantly my mind went nuts worried about the potential problem this could be: another flare-up. It seemed to be intensifying every 5 minutes or so. My first and only flare up started this same exact way: right before bed my legs became as heavy as logs and I couldn't pick them up.
I tried not to cry - I succeeded, mostly. I figured I'd been through this before so it would all be fine eventually. But then I thought about the future and that one day it night not be, or that one day my MS will become more progressive. Though it's typical for it to not be that severe, someone does have it awfully bad - and they don't know it til it comes. It's the fear of the future this disease brings. Especially at such a youbng age - that's a long time to think about it. Shit!
There's a few memories regarding my fear of my MS progressing with an animal show on cable that showed a woman who had MS relatively bad and stung herself with bees everyday to combat the symptoms and another woman that was on a debt documentary that was bed ridden and constantly shaking - she could barely talk - and looked forsaken of life... but the details are unimportant and the jist is in this small paragraph.

...celebrate we will, life is short but sweet for certain...

Wednesday, June 2, 2010

Running is probably not in the Books for Me

Sad but true.

Last night I told myself: "I'm getting up early and exercising!" This morning at 6am I forced myself up. I do have a roommate, so the living room yoga/cardio videos won't really do. I had to get myself outside!  Interesting... I've never done this before in 29 years.

I tossed on my exercise clothes; surprisingly I have a whole drawer full of em, and went out to the porch. It was a beautiful morning. It rained last night so everything was damp, including the air. It was warm - but a chill was lingering. My goal was to walk, that was it. I had no destination or speed. I hoped to run a block or two in the middle... but I know that you can't go from never exercising to running 3 miles.Not only would I only last about 1 block - I could strain muscles and actually hurt myself.
I still wanted to give the running a shot. I walked at a fast pace for about 5 minutes and thought I'd try a block, a quiet block off the beaten path - just in case I didn't make it far no one would see. And I didn't. I started off with a gentle bounce, pushing myself to go a bit quicker as I could. I couldn't. I feel no numbness, tingling or weakness in my legs typically... but running brought back all the memories of my flare up last August and how goofy I felt just walking. It's a hard to describe because I could run... but I felt weak, as if the next step my back leg would just collapse - though it never did. Also, both front thighs went numb. The straining felt so uncomfortable and the image of what I expected me to look like... made me stop. Why couldn't I just appreciate my goofiness... like Phoebe? Well... because I might fall? Ha.
I instantly hit a mental wall - but I kept walking. My thoughts were not optimistic... "Why even walk then?" "Will I ever build enough muscle to get over this?" "Will I ever be able to run at full speed?" This relates to an experience from last week when I tried to ride my brand new bike to work. TO work, it's a great 12 minute downhill, lakeside jaunt. FROM work... well, the hill isn't exactly Mt. Kilimanjaro - but I could not get up it. Between not being in shape and having this fun little thing called MS... I struggled and sweat - at times my legs just wouldn't even push. I would stop mid hill, in the street and just sit.
So - onto my research: If one area of your body is affected by your flare-ups, does that tend to be reoccurring? Is that a good thing or does it show progression of the disease? Will muscle strengthening help? Or will I, no matter how strong I am, be afflicted by weak legs? Onto to the NMSS site to find out!