tag:blogger.com,1999:blog-83115047820613333222024-03-13T16:33:33.385-05:00My New Life, with MSAugust 3rd, 2009 at the age of 28 I was diagnosed with Multiple Sclerosis. This is my tale as I go along with all the new things it brings to my everyday life.Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.comBlogger42125tag:blogger.com,1999:blog-8311504782061333322.post-89917427760132165522013-11-06T10:58:00.005-06:002013-11-06T10:58:50.960-06:002.5 years since my last post.<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">Two and a half years since my last post and this one comes out only because someone remembered off of Facebook that I had this and a friend, newly diagnosed, is looking for positives during this time of fear and stress. </span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">I haven't posted in two and a half years because I have been living a typical early 30s life. Not without its ups and downs - but nothing that MS has been able to take from me. Every week I still take a shot and every day I still use the bathroom 3 times more than the normal person - and every day I am reminded how worse it could be. </span></div>
<div style="text-align: justify;">
</div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span></div>
<div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">That itself is a plus and minus. Even if it gets worse... it could <i>still be worse than that</i>! When do I draw the line? I hope to never, I hope that I can adapt to whatever comes my way - but hell I hope it doesn't come til I'm in my 70s. Let's be honest, though, even the smallest things can piss us off. With my MS I have to ask for an aisle seat whenever I can - for easy access to a restroom, I often have sore thighs due to my shots wearing on my muscles, I can't spit out the words I was thinking, I can't remember that one thing I was just supposed to do 1 minute ago... so dumping my head down in my hands and sighing is just about all I can do.</span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">Until my legs stop holding me up, until my eyes darken my world, until I'm stumped with thoughts I just can't articulate no matter what sense it all makes in my head - My life is great.</span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span></div>
<div style="text-align: left;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">To the newbies: You may have it harder than me - but just remember that life's struggles are given to everyone </span><span style="text-align: left;"><span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">indiscriminately and we have to play the cards. Look for the positives - the negatives weigh 100 times heavier but they only hold us down when we let them.</span></span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;"><br /></span></div>
<div style="text-align: justify;">
<span style="font-family: Helvetica Neue, Arial, Helvetica, sans-serif;">xoxo</span></div>
</div>
</div>
Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com1tag:blogger.com,1999:blog-8311504782061333322.post-40324245447133343472011-05-04T14:01:00.000-05:002011-05-04T14:01:10.836-05:00MS Walk 2011<div dir="ltr" style="text-align: left;" trbidi="on"><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">MS Walk, 2.0. </span></div><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span> </div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><a href="http://3.bp.blogspot.com/-62FgV8Agdn0/TcGiKU9P-aI/AAAAAAAAAGw/zkHqR2hrEjQ/s1600/ms+group.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="235px" j8="true" src="http://3.bp.blogspot.com/-62FgV8Agdn0/TcGiKU9P-aI/AAAAAAAAAGw/zkHqR2hrEjQ/s320/ms+group.jpg" width="320px" /></a><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">1.5 years of MS officially diagnosis. Still feeling good and strong. Supported by a huge group of friends and I'm starting to feel stupid for advertising my disease. I feel like I should have a see-able problem... but alas in the world of MS that is not the case (I still want my handicapped parking pass though!). </span></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span> </div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">A great thanks to everyone below and anyone that donated. I promise, I'll have a flare-up one day and you'll be happy you walked for me! :)</span></div></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-61985848313055323772011-02-16T11:17:00.004-06:002011-02-16T12:21:03.039-06:00I am an Atheist with MS: Hear Me Roar, Ramble (and Whimper).<div dir="ltr" style="text-align: left;" trbidi="on"><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">We all take life for granted in some way or another but maybe a certain event changed that in some way. Even after then, even after a big change - location, relationship, medical - we can fall back into a "safe spot" and forgot who we are to the world: nobody. That is not a cynical viewpoint; it is in fact is the most optimistic view. We are all equal in our potential ups and downs. No matter our race, wealth, religion or geological location - we never know what is going to happen. There are statistics and rules, theories and ideas, but all in all - we never know what is going to happen.</span></div><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Recently I have been thinking about my "non-religiousness". It's helped me cope a lot with everything and anything from biological to emotional. Logic and reason leave no room for 'What ifs' or 'Why mes'... only 'Of courses' with a slight sigh. </span></div><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I am not heartless or depressed, only a realist and in that comes the reality check that things suck and as an Atheist I have no one to cry/bitch/whine to. Lucky them! And today I was checked into remembering that I have a disease that is beyond fixing by me or medicine. The brain is an amazing thing, something I do not understand at the smallest level. It is the cause and reason of us: biological, intellectual and philosophical. We are only neurological realities. That reality can be changed or dissolved in an instant. That is what I believe in.</span></div><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">MS Update: My day-to-day prior to 08.03.09 was "You only know people that get sick, YOU don't get sick" then on 08.03.09 I thought "MS is going to kill me" (nope), and since 08.04.09 its all: "I have MS now, its Wednesday - gotta take my shot, that bites, ooh my fingers are numb - whatever"... much more comforting even in a new norm. But today, 2.16.11, awaiting my neurologist's call back with my follow up MRIs I let my brain fall to pieces in worry about the results. Why bother? I have a debilitating neurological disease - that is fact. The fact also is constantly evolving into different things. Today I learned my brain lesions are the same as they were 8.03.09 (good thing). I learned one lesion on my C7 is smaller but that the lesion on my C4 is slightly larger. And that I have a new 5mm lesion on my C2. What does this mean to me? That I frequently go to the bathroom more because my body is attacking itself below the base of my skull. Bastard.</span></div><div style="text-align: justify;"></div><div style="text-align: justify;"></div></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-4046087412455511932011-01-11T15:03:00.000-06:002011-01-11T15:03:06.182-06:00Number #2 & Being Motivated<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"> </span><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Rambles: It's been since before Halloween that I decided to post. It's been because my MS has been sitting on the back burner. Not that I don't think of it everyday, it's hard not to. I'm always tired, words always come out wrong, it's still there and active - but it's now become part of my day-to-day. Nothing too intense that I can get up and go. I now have a new 'norm'.</span></div><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"> </span></div><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">2011 has begun with the excitement that my FSA account was replenished so I can go get the MRIs I was supposed to get in August to explain the frequent irination and common speaking goof-ups. I always want to restate how I am thankful and feel lucky to only have MS and to only be going through this - not something really scary but this is my world and this is all I have and its very different than before August 2009. </span></div><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span> </div><div align="justify"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Today's complaint: Side effects. I take medication for my medication. I pee every 20 minutes, so I take a pill, Oxybutynin, that has yet to kick in again because I stopped taking it because: My nose is so dry is bloody and crusty all day, my hands feel like a chalk board, if I closed my eyes right now I could fall asleep - though I do always feel like I've got a slight buzz, and though I'm still peeing every 20 minutes... I'm not... well, you know, that other thing. So today I took a medication to deal with that. And now I'm having stomach cramps yet no action. </span><span style="font-family: Arial;">I've decided MS isn't scary, its Annoying and Embarrassing. I've been to the bathroom about 10 times today and it's 2:25pm, 2.5 hours to go. It could be worse.</span></div><div align="justify"><span style="font-family: Arial;"></span> </div><div align="justify"><span style="font-family: Arial;">But today I don't want to think about the 5th glass of water I'm drinking that is not quenching my thirst, but is causing me to go to the bathroom even more than I already am, nor do I want to think about the tingling in my sides or the shot tomorrow night... today I want to focus on the overall motivation of my life and think that I am fully capable of getting up and getting on with everything but I'm now. I still have an internal lack of inspiration and that is worse than the MS. I would rather see a psychologist to find the root of my sloth instead of a neurologist to understand the numbing oy my fingertips. *pee break* That is all science, that is my brain f**king up in a whole new way. What in the world has instilled in me this notion of Lazy? I want it gone. I want a shot to take that doesn't cure me, but gets my ass out and about. Where is that disease modifying drug?</span></div><div align="justify"><span style="font-family: Arial;"></span> </div><div align="justify"><span style="font-family: Arial;">I need motivation to research motivation: <a href="http://en.wikipedia.org/wiki/Motivation">http://en.wikipedia.org/wiki/Motivation</a></span></div><div align="justify"><span style="font-family: Arial;"></span> </div><div align="justify"> </div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-48250955306555797672010-10-26T10:20:00.000-05:002010-10-26T10:20:12.315-05:00$40,258.88<div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I haven't had much to say lately... that is always good, right? No mail is good mail cos that means no bills! Well speaking of bills... I just wanted to recalculate some numbers here. And of course I understand that if I did not have insurance I could have other assistance but if we just look at the rough number for shit's sake... this is what we've got annually for the MS if all symptoms were to stay as they are today:</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span> </div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">48 shots of Avonex: $38,877</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">730 pills of Oxybuytnin: $167.90</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">1 annual MRI vist (2 MRIs total): $1200</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">2 bottles of Ibuprofuen: $13.98</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span> </div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">For a grand total of: $40,258.88</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">forty thousand two hundred fifty eight dollars and eighty eight cents!</span></div><div style="text-align: justify;"><span style="font-family: Arial;"></span> </div><div style="text-align: justify;"><span style="font-family: Arial;">That means:</span></div><div style="text-align: justify;"><span style="font-family: Arial;">a) let's not get any other diseases</span></div><div style="text-align: justify;"><span style="font-family: Arial;">b) let's hate the evil world of medicine</span></div><div style="text-align: justify;"><span style="font-family: Arial;">and last but definitely most importantly:</span></div><div style="text-align: justify;"><span style="font-family: Arial;">c) get back to work Michelle you need to keep your damn insurance!</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-31140990609851670512010-09-29T13:29:00.000-05:002010-09-29T13:29:38.873-05:00Another Visit to the Neurologist, Another $25 Co-Pay, Another $500 MRI...<div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">My neurologist wants to see me twice a year - which I suppose isn't the worst, but now it's like the dentist. And at $25 a visit I get talked to, I mean talked <em>over</em>, for only 10 minutes. I feel like unless half my body if numb - why bother? This last visit - yesterday - I got orders for another MRI... boo, that is $500 (deductible)! Grr.</span></div><div style="text-align: justify;"><span style="font-family: Arial;"></span> </div><div style="text-align: justify;"><span style="font-family: Arial;">Ok - beyond the financials of it all... I've hit a rut. I want to openly discuss my MS and its problems and I wish to have it all positive because that's important. The internet is filled with negative and scary words on MS... and it's not always that way. Yet we must still stay realistic. I have been slapped with "real" the past few weeks. My mantra at the end of the night is "I am not in pain. I am not dying". Now please don't get me wrong, I am fully aware that most people in the world are worse off than me. Homeless, living in poverty, starving, living in war-torn lands, the list goes on and on. I am so thankful for the things I do have. But for my moment of shameless whining: the problems I'm having affect very mundane daily activities and until these were affected I didn't realize how for granted I took the simple things... doing more than 5 basic lunges in an exercise class, going to the bathroom a normal amount of times in a day with no effort, medication side effects (chills, aches, dry mouth, drowsiness, etc...). For all this I am sad. I am pissed. I am annoyed. I am utilizing my right to bitch and complain because my body is attacking itself because it is obviously fucking retarded. We all get this right - use it!</span></div><div style="text-align: justify;"><span style="font-family: Arial;"></span> </div><div style="text-align: justify;"><span style="font-family: Arial;">My tip to you: Stop and smell the roses, because one day you might not be able to be far from a bathroom long enough to do so. Take Yoga, because you may not be able to use you legs one day. And</span><span style="font-family: Arial;"> take advantage of Xanax prescriptions, just tell 'em you're "feeling anxious". :)</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-50622746665907897872010-08-18T21:17:00.001-05:002010-08-18T21:20:41.015-05:00MS Math.<div style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif; text-align: justify;"></div><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">What do you get when you add: PMSing, Last weeks shot being a bloody vein-y disaster, MS and an overall annoying day? Tears... everywhere. Wow! This isn't a sob story, don't feel bad for me,this is just a journal rambling.</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> </span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Everyone's life has moments that suck if not days or weeks or years. This is something I want to remind myself of in every moment of weakness I experience. Even when the light at the tunnel is temporarily off and I'm a lost soul moving directionless. If million people have it better than me then 50 million have it worse. Thank you for that! Selfish? Maybe.</span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"> </span><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Last week my shot went through a vein, blood literally squirted up and out of my leg and my gauze looked like the beginning of a promising horror flick. <i>And </i>it was super painful. This week I shook in anticipation of the same thing and reverted to months ago when it took me 30 minutes to mentally prepare to give myself a shot and I was so angry at myself, but I was scared.</span><br />
<br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">So what? In the last month two great guys at my work lost their wives... one in a tragic decade long battle, one shockingly and overnight. This is what's important. Life. My complaints and worries are so laughable compared. The stress that I create for myself could be transitioned into strength and ambition if I tried. Some people actually live a hell on earth. I do not.</span><br />
<br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">BUT If a shot brings you down... there is no shame in hanging your head low and letting a tear roll from your cheek. Your burden is your burden. Gravity pulls heavy and drops tears to where they belongs - to water the soil in which we see all rebirth. Hang your head not in shame - hang it in rest and recuperation for we all have our emotional battles; we are all human. </span><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">Lost point being: if you are someone with MS newly diagnosed or just with a pessimistic outlook in general finding and reading this: Bitch! Complain! Cry! Do whatever the hell makes you feel good. It's what we do as humans anyways. But let us not lose track of the tiny spec we are on the earth's surface and to sympathize and empathize with others when we can.</span><br />
<br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">You may have heard this saying - an headstone in Ireland reads: "Death leaves a heartache no one can heal, love leaves a memory no one can steal." Life is being able to feel both the good and the bad. We can't have one without the other. Though I wish I could have the faith that there would be a place where only Good exists after I die, I cannot. But I do bury myself in the enjoyment of all things physical here and now. When I die my last thoughts that follow the escape of my last breaths will be every happy moment I will have had - the smiles and giggles, pure moments of pleasure, butterflies and adrenaline rushes, hugs and kisses, the meeting of a new set of eyes, all the love I was lucky to be in and all the love I was lucky enough to give and even give up.</span><br />
<br />
<blockquote><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I breathe to gasp at the new things life throws at me. I hold my breath in anticipation of all thing exciting. I exhale in great exhaustion of being able to be. I sigh with contentment that I am.</span></blockquote><br />
<span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;">I'm off to get a beer... michelle* </span><br />
<div align="justify" style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com1tag:blogger.com,1999:blog-8311504782061333322.post-18219531985725212192010-08-03T11:09:00.000-05:002010-08-03T11:09:55.789-05:00One Year Anniversary<div style="text-align: justify;"></div><div style="text-align: justify;"><span style="background-color: black; color: #f3f3f3; font-family: Arial, Helvetica, sans-serif;">So at this time in the morning 365 days ago I was driving to Joel's house. He was going to take me to my 3rd MRI. I take the Alprazolam during the MRIs, it makes for a much cozier hour or so. On the freeway my doctor called and I picked up and told him I was on my way to the MRI place. He told me there was no need, he could see the lesions on three specific places on my brain and spine. It's official: I have MS.</span></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: black; color: #f3f3f3; font-family: Arial, Helvetica, sans-serif;">I start crying. I have no idea what this means for me but I do not I have an incurable disease and that I can't walk right and that half my body is numb. As I'm crying and driving to the freeway I try to clean myself up. Since I'm already so close to Joel's house and having a breakdown I figure it's best to get there and calm down before I drive back home. I walk in and Joel's ready to go, and then I just start bawling and he gives me a hug. And I cry in his arms for a minute or two and that is my reaction to my new world.<br />
</span></div><blockquote><span style="background-color: black; color: #f3f3f3;"><blockquote><blockquote><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: black; color: #f3f3f3;">"Life is not the amount of breaths you take,</span></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: black; color: #f3f3f3;">it's the moments that take your breath away." </span><span style="background-color: black; color: #f3f3f3;">Alex Hitch Hitchens</span></div></blockquote></blockquote></span></blockquote><span style="font-family: Arial, Helvetica, sans-serif;"><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: black;"><br />
<span style="color: #f3f3f3;"></span></span></div></span><div class="separator" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; clear: both; text-align: justify;"><a href="http://2.bp.blogspot.com/_mRRVHSjzZt8/TFg4UrPFuUI/AAAAAAAAAF8/ak8htQvF69Y/s1600/mswalk.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="background-color: black; color: #f3f3f3;"></span></a></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: black; color: #f3f3f3; font-family: Arial, Helvetica, sans-serif;">One year ago, already! Insane. But what I have learned in one year about the disease, about me, about my life - is that I am surrounded by the most amazing peple. People that have been around me forever, people that I've just met but our souls have seem like they've known each other for years, people that have come and gone in my life but have shown and offered their support to me without hesitation. It makes me ridiculously humbled that I know such rich and caring people. It makes me fill with pure happiness. For life is who we are with and what we do with our company.</span></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: black;"><br />
<span style="color: #f3f3f3;"></span></span></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><span style="background-color: white; color: #666666; font-family: Arial, Helvetica, sans-serif;"><span style="background-color: black; color: #f3f3f3;">I love you all, you know who you are.</span> </span> </div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><br />
</div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="http://3.bp.blogspot.com/_mRRVHSjzZt8/TFg6JnFOGXI/AAAAAAAAAGE/EdBCRDVHvXM/s1600/mswalk.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" bx="true" src="http://3.bp.blogspot.com/_mRRVHSjzZt8/TFg6JnFOGXI/AAAAAAAAAGE/EdBCRDVHvXM/s320/mswalk.jpg" /></a></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><br />
<span style="background-color: white; color: #666666;"></span></div><div style="text-align: justify;"><span style="background-color: white; color: #666666;"></span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-60542126821027980542010-07-23T10:11:00.000-05:002010-07-23T10:11:37.018-05:00Murphy's Law.<div align="justify">So of course, not days ago, I mention how this MS is nonexistent in my life. And last night, shot night, I get a lil scare... just to keep me in check I suppose.<br />
<br />
I thaw out my shot as normal and I'm putting the needle on, a bti shaky - it's hard! They're so small! I'm nervous that maybe I touched sterile to non-sterile, but I'm pretty sure I didn't. I'm also pretty sure that if it was complicated for people to keep clean they wouldn't allow us to stab ourselves with needles in our own homes. That shot goes in and - OW! Particularily achy... sigh*. Not new, sometimes it is, sometimes I can't feel a damn thing. But the next 30 minutes is that weird part. My right leg (shot leg) tenses up, almost numb but not. A bit tingly, but not really. And it rides up to my lower thigh. Because it happens right after my shot my head thinks "Staff infection!" I don't even really know what that is (<a href="http://www.staffinfection.net/">http://www.staffinfection.net/</a>). I know it can be bad though. So I tell Jaime - the roomie - that if it gets worse I'm going to the emergency room (oh I'm a bit anxious in my natural state... I have the worry of about 20 people built into my lil head). Long story shot - I woke up feel fine. But I felt "checked" by my MS and remembered last year, exactly this time of year I had no feeling in my left leg and I walked like I was drunk. And that happened overnight. <br />
</div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-33818809832853194772010-07-19T17:23:00.000-05:002010-07-19T17:23:07.471-05:00What is going on?! Anything?<div align="justify">Well to be honest I am very excitied to write this update... but I must admit its sort of sad not having things to blog about. Maybe I will get more involved with MS Awareness and new medical findings and local happenings?<br />
<br />
Anyhow, here's the deal: I am getting so good at my shot it's ridiculous. I really know how to fend off the side effects, and I rarely get them bad enough to make me think about them. And I've had only MINOR numbness here and there and maybe MS-caused fatigue. I'm really excited to type that all because August 3rd is not far away and that was my offical date of diagnosis and I am happy to say that all my fears from last year have been settled my explanation and research and stories from others.<br />
<br />
<3 hugs and kisses from a mildly and practically unactive MS world,
michelle*
</div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-48097224800011878442010-06-08T17:24:00.003-05:002010-06-08T17:25:35.959-05:00Fear Factor.<div style="text-align: justify;"><span style="font-family: "Courier New", Courier, monospace;"></span></div><div style="text-align: justify;"><span style="font-family: "Courier New", Courier, monospace;"></span></div><div style="text-align: justify;"><em><span style="font-family: "Courier New", Courier, monospace;">Don't get your hopes up - Joe Rogan is nowhere to be found, if he raises your hopes.</span></em></div><div style="text-align: justify;"><br />
</div><div style="text-align: justify;"><span style="font-family: "Courier New", Courier, monospace;">So... Yesterday I'm having a grand ole day and I get home from work and I'm eating dinner, picking up, watching some tv, working on the computer - all is handy dandy. Then... I turn off the tv, The X-Files - I'm hooked, seriously - and I go from tired to wide awake in 2 minutes flat. I am just tossing and turning. All of a sudden I feel a slight tingle, or maybe heat? - it was hard to say, in my legs. Starting low in my calves, after a half hour becoming pretty obvious. It felt as if a nurse had wrapped a couple blood pressure armbands around each of my calves. </span></div><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Courier New", Courier, monospace;">Instantly my mind went nuts worried about the potential problem this could be: another flare-up. It seemed to be intensifying every 5 minutes or so. My first and only flare up started this same exact way: right before bed my legs became as heavy as logs and I couldn't pick them up.</span></div><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Courier New", Courier, monospace;">I tried not to cry - I succeeded, mostly. I figured I'd been through this before so it would all be fine eventually. But then I thought about the future and that one day it night not be, or that one day my MS will become more progressive. Though it's typical for it to not be that severe, someone <em>does</em> have it awfully bad - and they don't know it til it comes. It's the fear of the future this disease brings. Especially at such a youbng age - that's a long time to think about it. Shit!</span></div><div style="text-align: justify;"></div><div style="text-align: justify;"><span style="font-family: "Courier New", Courier, monospace;">There's a few memories regarding my fear of my MS progressing with an animal show on cable that showed a woman who had MS relatively bad and stung herself with bees everyday to combat the symptoms and another woman that was on a debt documentary that was bed ridden and constantly shaking - she could barely talk - and looked forsaken of life... but the details are unimportant and the jist is in this small paragraph.</span><span style="font-family: "Courier New", Courier, monospace;"><br />
</span></div><div style="text-align: right;"><p><span style="color: #a64d79; font-family: "Courier New", Courier, monospace;"><em>...celebrate we will, life is short but sweet for certain...</em></span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com2tag:blogger.com,1999:blog-8311504782061333322.post-80717121682993121412010-06-02T09:39:00.003-05:002010-06-02T09:42:36.321-05:00Running is probably not in the Books for Me<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Sad but true.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
Last night I told myself: "I'm getting up early and exercising!" This morning at 6am I forced myself up. I do have a roommate, so the living room yoga/cardio videos won't really do. I had to get myself outside! Interesting... I've never done this before in 29 years.</div></span><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I tossed on my exercise clothes; surprisingly I have a whole drawer full of em, and went out to the porch. It was a beautiful morning. It rained last night so everything was damp, including the air. It was warm - but a chill was lingering. My goal was to walk, that was it. I had no destination or speed. I hoped to run a block or two in the middle... but I know that you can't go from never exercising to running 3 miles.Not only would I only last about 1 block - I could strain muscles and actually hurt myself.</span><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span><div class="separator" style="clear: both; text-align: justify;"><a href="http://1.bp.blogspot.com/_mRRVHSjzZt8/TAZs7zqN7zI/AAAAAAAAAFk/D-Gqj--cAeM/s1600/running.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><img border="0" gu="true" height="138" src="http://1.bp.blogspot.com/_mRRVHSjzZt8/TAZs7zqN7zI/AAAAAAAAAFk/D-Gqj--cAeM/s200/running.jpg" width="200" /></span></a></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I still wanted to give the running a shot. I walked at a fast pace for about 5 minutes and thought I'd try a block, a quiet block off the beaten path - just in case I didn't make it far no one would see. And I didn't. I started off with a gentle bounce, pushing myself to go a bit quicker as I could. I couldn't. I feel no numbness, tingling or weakness in my legs typically... but running brought back all the memories of my flare up last August and how goofy I felt just walking. It's a hard to describe because I could run... but I felt weak, as if the next step my back leg would just collapse - though it never did. Also, both front thighs went numb. The straining felt so uncomfortable and the image of what I expected me to look like... made me stop. Why couldn't I just appreciate my goofiness... like Phoebe? Well... because I might fall? Ha.</span><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I instantly hit a mental wall - but I kept walking. My thoughts were not optimistic... "Why even walk then?" "Will I ever build enough muscle to get over this?" "Will I ever be able to run at full speed?" This relates to an experience from last week when I tried to ride my brand new bike to work. TO work, it's a great 12 minute downhill, lakeside jaunt. FROM work... well, the hill isn't exactly Mt. Kilimanjaro - but I could not get up it. Between not being in shape and having this fun little thing called MS... I struggled and sweat - at times my legs just wouldn't even push. I would stop mid hill, in the street and just sit. </span><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">So - onto my research: If one area of your body is affected by your flare-ups, does that tend to be reoccurring? Is that a good thing or does it show progression of the disease? Will muscle strengthening help? Or will I, no matter how strong I am, be afflicted by weak legs? Onto to the </span><a href="http://www.nationalmssociety.org/index.aspx"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">NMSS site</span></a><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"> to find out!</span></div></div></div></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-18308159777754319662010-05-24T21:47:00.003-05:002010-06-02T09:44:43.800-05:00MS Symptoms: Severe, Subtle, Annoying, Expensive. They Come in all Shapes and Sizes.<div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;">This may be too information fro some. I know. But the whole idea of this is that if anyone, newly diagnosed or soon-to-be, they can Google "MS Blog" and see different experiences of the disease. The more the better - good and bad. When I was first starting to go through my 2nd bout of MRIs I starting Googling and I came across such a mixture of personal stories. The negative ones scared me - but took me into the world I was soon to visit. The positive ones reminded me no matter what it was my decision how I reacted.</div><div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;"><br />
</div><div class="separator" style="clear: both; text-align: justify;"><a href="http://1.bp.blogspot.com/_mRRVHSjzZt8/S_s6PFSTVJI/AAAAAAAAAE0/F4qUx2Q-CKA/s1600/tp.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="http://1.bp.blogspot.com/_mRRVHSjzZt8/S_s6PFSTVJI/AAAAAAAAAE0/F4qUx2Q-CKA/s200/tp.jpg" width="150" /></a></div><div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;">My decision has led me to openly discuss the anxiety and panic of the first flare up and learning how to take my medicine - but shows the transition back into myself: Loud, abrasive, blunt, yet funny and friendly. Without having a second major flare up I feel both lucky and as if I've dropped my guard - that one summer night this year I will fall asleep to heavy legs and wake up unable to walk. As I should. It will happen again. But for not - that is not the case. For now I have small, minor, annoying symptoms: my 3 stupid left fingers come and go with numbness... I have been constantly tired for 3 days now (though it has enabled me to watch almost a full season of The X Files - so it's not all bad)... and I think my bladder control may be weak. I'm not in the Depends aisle - but last week Friday I counted that I had gone to the bathroom 7 times before lunch with only one cup of coffee. This isn't new - but it's becoming more persistent and a pain in my side.</div><div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;"><br />
</div><div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;">Of course 3 weeks ago I saw my doctors - both my physician and my neurologist. My physician said, "Don't forget to tell your neurologist about that," and I said, "Ok!" What did I do? Forgot. Not entirely my fault - he likes to be direct and fast and talks over me even when he asks me questions. Don't get me wrong - I feel very confident in his hands... but I can't say that I don't feel rushed. So I forgot to tell him that I have to "tinkle" a tiny bit every 20 minutes most of the time. I even know there's a medicine for it... so I should have called him back at least when I'd finally remembered. But here I am considering the options: Calling back, asked to come back in - spend another $25 on a co-pay - for another prescription - another co-pay - for something <i>should </i>end on it's own within a reasonable amount of time - hopefully.</div><div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;"><br />
</div><div style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; text-align: justify;">I should spend the next day or so researching this and really call back - or at least utilize some home remedies... but let me tell you this there are many reasons to love my job and work 14 feet from the bathroom is right up near the top!</div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com1tag:blogger.com,1999:blog-8311504782061333322.post-57557940168905300082010-04-23T10:49:00.002-05:002010-06-02T09:45:26.029-05:00Shots.<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">So here it is... if you do your shot on an angle or are lucky enough hit one of the tiny little veins that run in your thigh... it will hurt. and it will bleed. quite a bit.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Also if you give yourself a shot hungover you will most likely do your shot on angle and it will hurt. and it will bleed. quite a bit.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">:)</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com1tag:blogger.com,1999:blog-8311504782061333322.post-21430516533049264572010-04-13T13:00:00.002-05:002010-06-02T09:49:55.378-05:00Follow - Ups are for the birds<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">So without sounding too pessimistic (ha!)... follow ups for MS are ridiculous. Unless you are currently having a flare up (thankfully I am not) your doctor will ask your current symptoms - and if nothing is going on he will say "Well there's no need for more <span class="goog-spellcheck-word" style="background: yellow;">MRIs</span> now, I'll see you again in 6 months" - and <span class="goog-spellcheck-word" style="background: yellow;">that'll</span> cost you $78 (with insurance).</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span class="goog-spellcheck-word" style="background: yellow;">Ok</span> - so optimistically - I have no major symptoms and there is only need for <span class="goog-spellcheck-word" style="background: yellow;">MRIs</span> when things are a-changing. I am in a good place not physically and mentally. But still... I can keep a log of my symptoms for $3.99 (cost of log) and call you when something gets crazy.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">19 days 'til the walk and Post-Walk party! Score!</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com1tag:blogger.com,1999:blog-8311504782061333322.post-76356185210784054482010-04-02T08:03:00.002-05:002010-06-02T09:45:58.300-05:00April 2nd - One Day Away from 8 months diagnosed.<div style="text-align: justify;"><span style="color: red; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;"></span></div><div class="separator" style="clear: both; text-align: justify;"><a href="http://4.bp.blogspot.com/_mRRVHSjzZt8/S7Xq8V3DpeI/AAAAAAAAAC8/KKvignLUtwc/s1600/heels.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="color: red; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;"><img border="0" height="143" nt="true" src="http://4.bp.blogspot.com/_mRRVHSjzZt8/S7Xq8V3DpeI/AAAAAAAAAC8/KKvignLUtwc/s200/heels.jpg" width="200" /></span></a></div><div style="text-align: justify;"><span style="color: red; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">And exactly one month until the MS Walk in Milwauke, </span><a href="http://main.nationalmssociety.org/site/TR?px=3462383&fr_id=13768&pg=personal"><span style="color: white; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">join or donate today</span></a><span style="color: red; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">! I currently have 22 friends/family walking with me - and that support is amazing. Taking a Sunday to walk around the lake with me - ridiculous. I have raised over $450 and the team itself has raised over $600! I feel loved. I hope in some way I can show each person how significant their efforts are to me. Thank you.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="color: red; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Wednesday night I took my shot a bit early so I could go pick up the dogs (dogsitting for the weekend). I decided to take the shot a bit higher than normal (normal = where the nurse said, despite what the directions said) and mush to my surprise I didn't feel a g*damn thing. This is exactly how it went around the first time, with the nurse - but it's never been that way since. Not that it's excruciatingly painful - but sometmes it is pretty uncomfortable. This week was a piece of cake! 7 months into Avonex and I'm doing great.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="color: red; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">I do have the consistent 2 numb tips of fingers on my left hand - mainly in the morning. But it doesn't even affect my typing. Though the flu-like effects of Avonex still come - and typically dwindle off but stick around for about 16 hours... I have been at 98% performance. A bit tired - but that could just be my typical self.</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-15732507399155527132010-03-11T11:48:00.001-06:002010-06-02T09:46:19.484-05:00New Flare Up? How can you tell?<ul><li><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">First things first: I was supposed to go to the doctor at the beginning of the year. It's now March 11th.</span></div></li>
<li><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Second things second: My left leg aches, I woke up in the middle of the night the other day in a weird stage of feeling numb all over but not. Impossible to describe.</span></div></li>
<li><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Third things, <span class="goog-spellcheck-word" style="background: yellow;">th</span>- well you get the idea: I think I am stressing myself into a small relapse.</span></div></li>
</ul><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span class="goog-spellcheck-word" style="background: yellow;">Ok</span>, I am planning to make doctor <span class="goog-spellcheck-word" style="background: yellow;">appts</span> for April. I may that today in fact. I just really don't have the time nor patience for taking off work and going to doctors, probably will have to schedule a new MRI... and that's an easy $500 right there.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span class="goog-spellcheck-word" style="background: yellow;">FM'MS'L</span>.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">;)</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-14104102414629539042010-02-11T12:44:00.001-06:002010-06-02T09:46:37.366-05:00Question to ask doctor - do not forget!<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">What is it that I am hitting when I take my shoot that makes my muscle twitch? A tendon? Nerves? Is it <span class="goog-spellcheck-word" style="background: yellow;">ok</span> to do?</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Last night's shot was taken a bit later than usual so I followed it up with two Tylenol PM so I didn't wake up earlier than I had to. As I shoved the <span class="goog-spellcheck-word" style="background: yellow;">lil</span> guy in, the muscle <span class="goog-spellcheck-word" style="background: yellow;">tremored</span> inside my leg and it almost made me loosen my grip on the syringe. This has happened once before. Very odd sensation for sure!</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-57443255551078021202010-02-09T20:07:00.001-06:002010-06-02T09:47:06.622-05:00Growing Pains<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span class="goog-spellcheck-word" style="background: yellow;">Ok</span>, what's the deal? Not sure if it's MS related or what - but I've been in a bit of pain lately. Sharp pains in my neck here and there, my left knee cap is all tight again - it almost feels like... the cold part of <span class="goog-spellcheck-word" style="background: yellow;">Bengay</span> mixed with the dullest discomfort. Shoulders are tight - but that's normal for me. There was sometime when my tight thigh, in the middle was throbbing... but that went away quickly. Then the weird sight things... every once in awhile, so a split second I feel dizzy and have to blink a few times just to re-adjust. But I don't know hat that means. I just might be tired... oh yes, tired! I'm tired ALL THE TIME. I feel like you just talk yourself into fitting symptoms and I'm hoping that's what I'm doing.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Mind over matter!</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I do have to go to my Neurologist soon - I should have went in January but I think that means another MRI and that's a $500 deductible and I just finished paying off last years <span class="goog-spellcheck-word" style="background: yellow;">MRIs</span> and Chiropractor visits (when I thought... I mean hoped it wasn't MS - that was a waste, huh?). It's all follow up and I do need my liver tested... I guess the story goes that my <span class="goog-spellcheck-word" style="background: yellow;">meds</span>, <span class="goog-spellcheck-word" style="background: yellow;">Avonex</span>, can affect my liver - as can the aspirin I take to cover the side effects, AS can the drinks I have to accompany the aspirin that I use to cover my <span class="goog-spellcheck-word" style="background: yellow;">meds</span> side effects. Woo whee. If I even have a liver I'll be excited! I'll call my doctor soon... after taxes perhaps? That's a whole other story... sigh*</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-41956386534801085792010-02-03T21:57:00.001-06:002010-06-02T09:47:31.187-05:006 Months Today!<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">So today with a glass of wine and my shot... of course, its Wednesday! I "celebrate" my 6 month anniversary with the official diagnoses of MS. But always with life you take the good and the bad and figure out the way to make the good outweigh the rest, even it its with a little fudging of the numbers.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Where am I? I have had slight symptoms return... every once in awhile I have a tingle here or there but no "flare ups" as they call them. Besides the physical, I think I may be feeling more of the fatigue than anything else and it's kind of hard to keep on task, but that's not all that bad.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Lately I'm almost feeling guilty for spreading the news and participating and advertising the local MS walk in my area in May. It is something directly affecting me, but that's not to say there aren't a million things more important to worry about for the world or anyone else personally. I think of a ton of them everyday. Each of those days the world is disappointing, scary, sad... so I look at it like this: there are still hundreds of thousands of people (officially diagnosed) with MS. So even if my small contribution to caring is somewhat selfish - its still a contribution nonetheless.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">In my head I feel 100% fine and my biggest fear is returning to where I was during my most disabled moments. Fearing that I couldn't cross the street faster than the car coming towards me - despite the fact its a block away, unable to stand during a concert - wavering against the chair I should have just sat in and left the tears for something more deserving, unable to feel my leg or my chest - like Novocaine shot directly into my nervous system... I've always hated the dentist. I've got it better than many and I treasure every day, wherever the gift has come from.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">One thing that has helped is the supportive words from close and distant friends. Sharing my situation seems to be another selfish act, but kind words go a long way. For anyone that has taken a moment out to give me your thoughts - thank you. Your words do not come without returned emotions. And anytime you need me, I am there.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">With all of life's trials and tribulations you take them as they come and since I am fine at the moment these worries are left for the birds! Take that! My worries are left for bills and busy days... headaches and commitments... life is life. I am living it... and with the inspiring words I've read today from a friend... "If it changes your life, let it. Nobody said life would be easy, they just promised it would be worth it," I bid you adieu.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">m*</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-13422665343418614292010-01-07T10:47:00.001-06:002010-06-02T09:48:03.380-05:002010: new year, new decade, new ink!<div align="justify" style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">2010, 7 days in and you aren't the worst thing to happen to me!</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span><div align="justify" style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Last night I took my shot at 10pm with 3 Tylenol. Went to bed, woke up feeling just great! Which was a 180 to last week in which I took it at 2pm - planned some day drinking/socializing with a friend over my furlough - and no aspirin - I was going to be drinking - and I ended up feeling every little bit of the <span class="goog-spellcheck-word" style="background: yellow;">Avonex</span> aftermath!</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span><div align="justify" style="text-align: justify;"><a href="http://4.bp.blogspot.com/_mRRVHSjzZt8/S0YOEacqF8I/AAAAAAAAABY/DkSQs3h1z5E/s1600-h/michelletat.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><img border="0" ps="true" src="http://4.bp.blogspot.com/_mRRVHSjzZt8/S0YOEacqF8I/AAAAAAAAABY/DkSQs3h1z5E/s320/michelletat.jpg" /></span></a><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I also took my shot after getting my brand new baby. And I shared the experience with my best male friend, Joel. He's a huge Dave Matthews fan, and Two Step is one of my favorite songs of all time. Considering my new outlook on life - it's short and I'll be dead one day, it seemed most appropriate. And yes, I have a best friend of each sex and they are the most incredible people in my life.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span><div align="justify" style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">...Celebrate we will life is short but sweet for certain...</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Two Step, <span class="goog-spellcheck-word" style="background: yellow;">DMB</span></span></em></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Say, my love, I came to you with best intentions <br />
You laid down and gave to me just what I'm seeking </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Love, you drive me to distraction </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><a href="http://1.bp.blogspot.com/_mRRVHSjzZt8/S0YOHXoTQ3I/AAAAAAAAABg/-0eNIahE6KA/s1600-h/joelstat.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;"><img border="0" ps="true" src="http://1.bp.blogspot.com/_mRRVHSjzZt8/S0YOHXoTQ3I/AAAAAAAAABg/-0eNIahE6KA/s320/joelstat.jpg" /></span></em></a><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Hey my love do you believe that we might last a thousand years </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Or more if not for this, </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Our flesh and blood </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">It ties you and me right up </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Tie me down </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Celebrate we will </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Because life is short but sweet for certain </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">We're climbing two by two </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">To be sure these days continue </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">These things we cannot change </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Hey, my love, you came to me like wine comes to this mouth </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Grown tired of water all the time </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">You quench my heart and you quench my mind </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Celebrate we will </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Because life is short but </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Sweet for certain </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">We're climbing two by two </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">To be sure these days continue </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">The things we cannot </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Celebrate, you and me, climbing two by two, to be sure </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">These days continue, things we cannot change </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Oh, my love I came to you </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">With best intentions </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">You laid down and gave to me </span></em></div><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Just what I'm seeking </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Celebrate we will </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Because life is short </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">But sweet for certain </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">We're climbing two by two </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">To be sure these days continue </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Things we cannot change... </span></em></div><div align="justify" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;">Things we cannot change</span></em></div><em><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span><span style="color: #f1c232; font-size: x-small;"></span></em><div align="justify" style="text-align: justify;"><em><span style="color: #f1c232; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: x-small;"></span></em></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div align="justify" style="text-align: justify;"><br />
</div></span>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-67374560859207126062010-01-03T15:22:00.001-06:002010-06-02T09:48:27.655-05:00twenty10.<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Ah, 2010. Hello you mysterious year, you. What do you have in store for me? Only time will tell.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Oddly enough, I could be typing this at 3:12pm on this Sunday afternoon and I could be dead by tomorrow morning. But with all "optimism" aside - I could make it and things could be worse!</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Or better. Resolutions. Have you made one? or Three? I have had a few ideas on my mind for the past few months and am hoping that the new year will remind me of these and that I will try to consciously to myself right.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">The only one that I can guarantee I will hold on to the longest is that fact that I will not let my new disease let me down. In the past 3 weeks I have mentally beaten my medicine - though it still physically kicks my ass once a week. I have been feeling slightly weak in the thighs... I haven't tossed a single pair of heels, or lost one ounce of confidence to embarrassment. And I refuse to because laughing if off will make me feel way better.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">There are other things that may beat me or that I will not be able to change... my diet, my finances, my love life... but those are lifelong battles themselves for everyone. And even in the depths of lows I'll still appreciate them as part of my life, that I'm living. I hope I'm here tomorrow to keep talking about it.</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-50876282101208314172009-12-14T19:22:00.001-06:002010-06-02T09:49:00.078-05:00Mexico Sun, the New MS<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">4 nights spent in the beautiful and sunny <span class="goog-spellcheck-word" style="background: yellow;">Cabo</span> San Lucas will let you forget about all your worries.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">One of my dearest friends married the man of her life on the beach, in the sun, what a fairy tale. She looked like a princess and I was most honored to be there.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">There was beer, tequila, love and lust in the air. All was welcome.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Any problems you ask? I was photographing for the bride and I was <span class="goog-spellcheck-word" style="background: yellow;">heartbreakingly</span> nervous about it. In bed the night before, at 1:30am, trying to come down form the socializing only mere minutes before my mind raced around and around going over what I had to do and cover. In my head I was unable to stop the thinking and focus. Instantly I had some tingly and numbness in my legs and arm. But it wasn't typical. All I could think was that I was stressing myself into a flare-up. I think I read about that - and hardly thought it was something that could happen instantly but I figured the whole stress was building for awhile.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I did not fall asleep until 4ish... after I thought that there may have been an allergic reaction occurring. The blanket at the hotel was very weird and strangely enough I was able to fall asleep and the sensations went away. I suppose only time will tell though.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">The wedding day I was up early and able to perform. After pictures I was able to suck them back and have an amazing time with my best of friends while making new friends for the night and ended everything on the dance floor. July 5th I thought I'd never wear heels again <span class="goog-spellcheck-word" style="background: yellow;">nevermind</span> dance my ass off in them. With a hot boy at that. Wedding <span class="goog-spellcheck-word" style="background: yellow;">Cabo</span> San Lucas a success. Thank you Krista for falling in love.</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br />
</span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">&<span class="goog-spellcheck-word" style="background: yellow;">lt</span>;3</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-51787628710225170372009-11-19T15:23:00.001-06:002010-06-02T09:49:37.438-05:00Interferon-what?<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">What is it exactly that I have surging through my body at this very moment? 21 hours after my shot I can feel the side effects... tight and achy back, heavy neck, and I'm <span class="goog-spellcheck-word" style="background: yellow;">sooooo</span> tired. This is every Thursday. Typically I combat this with a Thursday Wine Night which is better than 30 Tylenol! Until the next morning when I need 30 Tylenol to help combat the 2 bottles of wine. Never ending battle I tell you!</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">So what do I have running through my tissue that is supposed to help me fight off MS and it's potentially debilitating work on my body? Interferon Beta 1a. Well, <span class="goog-spellcheck-word" style="background: yellow;">WTF</span> is that?</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><blockquote><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span class="goog-spellcheck-word" style="background: yellow;">Interferons</span></span></div><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span class="goog-spellcheck-word" style="background: yellow;">Interferons</span> are proteins that are found naturally in the body. They are part of the immune system and normally help your body respond to infection. There are three types of natural <span class="goog-spellcheck-word" style="background: yellow;">interferons</span> in the body: alpha, beta and gamma. The use of interferon for medical treatment became available when techniques were developed for producing large quantities of them.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Interferon alpha is used in the treatment of some cancers, but has no effect on multiple sclerosis. Interferon gamma was also found to have no beneficial effect on multiple sclerosis. However, interferon beta has shown effectiveness as a multiple sclerosis treatment.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">The active ingredient in <span class="goog-spellcheck-word" style="background: yellow;">AVONEX</span> is a type of interferon called interferon beta-1a. Only Interferon beta-1a therapies (<span class="goog-spellcheck-word" style="background: yellow;">AVONEX</span> and Rebif®) are indicated to reduce the number of flare-ups (relapses) and slow the accumulation of physical disability. Interferon beta-1b (Betaseron®) is only indicated for decreasing the number of flare-ups. The difference between interferon beta 1a and interferon beta 1b is in how they are made.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">While the exact method by which interferon beta 1a achieves its beneficial effects in multiple sclerosis remains unknown, some researchers believe it may reduce inflammation. Studies looking at how interferon beta behaves in the lab suggest it may stop harmful cells from entering the brain. This theory has not been tested in people. </span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">- <a href="http://www.avonex.com/">www.<span class="goog-spellcheck-word" style="background: yellow;">avonex</span>.com</a></span></div></blockquote><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Oh, is that it?</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Well it makes sense. They technology to replicate proteins that I make - that help my immune system... it all makes sense. But the mystery of it all - the actual reasons why it all works - and in some and not always in the same way... boggles my brain. When I try to think about it my mind might as well melt out of my ears.</span></div><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><div style="text-align: justify;"><br />
</div></span><div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I want to know more... why do I have these side effects. IF the protein overload too much for my body? Are some being rejected? Am I actually feeling the liquid move through my body? How is it is stays in me for 1 week? I'm being quite inquisitive today I must admit.</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0tag:blogger.com,1999:blog-8311504782061333322.post-73695031817615482672009-11-18T14:39:00.001-06:002010-06-02T09:50:24.496-05:00Just one of them days...<div style="text-align: justify;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Good News! This week my spirits are up and I think it's another one of Mother Nature's tricks up her sleeve that got me not the MS. That dirty bitch. Tonight is shot night and I'm already nervous - but I definitely have slowed the insertion down a bit. Makes me feel more in control, less opportunity for shaky mishaps. Oh and no symptoms, not even the warm thigh sensation... which was kinda nice... like my own Ben Gay or Icy Hot machine. Oh well.</span></div>Kasper*http://www.blogger.com/profile/15971583830783558551noreply@blogger.com0